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#776237 - 09/30/08 08:11 PM Re: Which medication gives you the most relief ***** [Re: Code21]
RubixCubeTO Offline
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 Originally Posted By: Code21
My fibro is worse over the thin bony parts of my body (I'm sure this is the way it is for most of us) and the lidoderm patches are SOOO good for that! I had some real nasty pain on my shoulder blade a few nights ago, put one of those on and it was gone. I was amazed. They really do work, but I think best on those thin bony areas.


where can you get these lidoderm patches?
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#776240 - 09/30/08 08:14 PM Re: Which medication gives you the most relief [Re: RubixCubeTO]
nitemoon Offline

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 Originally Posted By: RubixCubeTO
 Originally Posted By: Code21
My fibro is worse over the thin bony parts of my body (I'm sure this is the way it is for most of us) and the lidoderm patches are SOOO good for that! I had some real nasty pain on my shoulder blade a few nights ago, put one of those on and it was gone. I was amazed. They really do work, but I think best on those thin bony areas.


where can you get these lidoderm patches?


From your doctor.
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#776243 - 09/30/08 08:16 PM Re: Which medication gives you the most relief [Re: RubixCubeTO]
pillar Offline
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Sorry to but in, but I've gotten mine fro my doc and they are pricey without ins.

http://www.drugstore.com/pharmacy/prices/drugprice.asp?ndc=63481068706&trx=1Z5004
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#776246 - 09/30/08 08:17 PM Re: Which medication gives you the most relief [Re: nitemoon]
pillar Offline
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beat me to it.
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#776623 - 10/01/08 11:57 AM Re: Which medication gives you the most relief [Re: pillar]
pillar Offline
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Mom's pain doc put her on Provigil 100mg today. I feel much better about that then the Ritalin our PCP gave her for counteracting the drowsiness effect from all her other meds.
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#777033 - 10/01/08 10:41 PM Re: Which medication gives you the most relief [Re: pillar]
Code21 Offline
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Yeah I got them from my doc. I have insurance so that was good. They are nice but not the greatest thing for pain, just good if you have an area over a bony part that is bothering you. They are good for my shoulder blades, rib cage, sometimes neck, but wouldn't do a damn thing for my joints, especially my knees which are so bad right now I can barely walk.
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#777760 - 10/03/08 01:54 AM Re: Which medication gives you the most relief [Re: pillar]
PrivateRealm Offline
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 Originally Posted By: pillar
 Originally Posted By: Code21
Wow Pillar, your poor Mom. Is all of that for FM? Sorry if I'm being too personal. I've had a lot of those medications in the past. Just not the fentanyl - does she get that for her FM or something else? I've heard of Dr's giving the Fentanyl for FM before... I really hope my pain never gets that bad. \:\(

Mirapex is for RLS - I tried it once and it gave me horrible headaches. I took Sinemet(sp?) for a while as well, until I started having real bad, weird nightmares. My RLS, however, has seemed to fade away since I started doing yoga and really stretching my legs. In fact, this is the first time in a long while I've thought about my RLS! *knocking on wood now*



No she has a heart condition, TIA's, diabetes and arthritis. The Fentanyl is more for her headaches caused by several herniated discs, in her neck. She takes Mobic and sometimes prednisone for the FM. Our doc put her on Ritalin, for energy today and I'm wondering if Provigil wouldn't have been a better choice? She has high-blood pressure already(takes meds for it) and a serious heart condition plus the mini strokes. Won't Ritalin raise her BP and put her at greater risk for stroke and heart attack then Provigil would? She has excellent BCBS ins., so payment isn't a problem. I just really question the use of Ritalin as a stimulant, when her problem is poor sleep schedule/routine.

Any thoughts or comparisons? She's only 55 and I would be crushed if I lost my Mom. I worry about her daily and try my best to keep her stress level down. I take her to most doc appointments and check in every 2-3 days to see if she needs anything. Her husband thinks there's nothing wrong with her but the doctors and the meds. He had the audacity to come home 2 days ago and [censored] at her for not sweeping the floor. When she explained she was in severe pain he told her to do it sitting in a chair!! I want to shove that chair so far up his azzhole he'll be tasting casters for months!

I've tried to get her to come on here or join a support group for FM and chronic pain but she's too embarrassed. This prick wants her to grin and bear sex, which causes her extreme pain and bleeding, just to satisfy his needs. Jerk-Off or get the [censored] out of my Mom's life if he feels that way, you know! I've fought him once over [censored] like this and have court in 2 weeks because of it. But I won't let him push my Mom around and attempt to make her feel like less of a woman because of a disease, she can't control. I don't really know how to help her any more than I already am, but I need to be doing more for her.


My Mom is 51, though luckily in good health, so I know how you feel. I can't imagine being without my Mom. On the Ritalin, yes. It can raise her BP and lessen her threshold for other related problems. I have hypertension and no way would my Dr put me on amphetamines.
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#777802 - 10/03/08 06:10 AM Re: Which medication gives you the most relief [Re: pillar]
Code21 Offline
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 Originally Posted By: pillar
Mom's pain doc put her on Provigil 100mg today. I feel much better about that then the Ritalin our PCP gave her for counteracting the drowsiness effect from all her other meds.


How is she doing on the Provigil? I've always considered that one and am getting a sample of it with an order I placed so I could try it.
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#778389 - 10/04/08 08:31 AM Re: Which medication gives you the most relief [Re: Code21]
sarahte Offline
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Hello everyone.

From another thread I was given the drug name/nickname:

Narcon ??

I dont see info readily here in the drug pages~ does anyone know what that is and why it is used for Fibro?

Thankies.
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#778431 - 10/04/08 10:55 AM Re: Which medication gives you the most relief [Re: sarahte]
martind Offline
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 Originally Posted By: sarahte
Hello everyone.

From another thread I was given the drug name/nickname:

Narcon ??

I dont see info readily here in the drug pages~ does anyone know what that is and why it is used for Fibro?

Thankies.


Norco?
Narcan?
One of those?

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#778449 - 10/04/08 11:26 AM Re: Which medication gives you the most relief [Re: martind]
sarahte Offline
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from this Thread:

http://www.drugbuyers.com/vip_members/board/ubbthreads.php?ubb=showflat&Number=235695&fpart=1


Sullivan's quote:

"Also my SIL is a DO in MI she told me that to treat Fibro she has Narcan and something compounded for her patients."

I would love to know what it is.
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#778526 - 10/04/08 01:22 PM Re: Which medication gives you the most relief [Re: sarahte]
sarahte Offline
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I am also interested to know if any are getting Fibro relief from 'neurontin'

In other FMS forums I get very mixed messages.

Either hate it/ or say its a life saver.
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#778529 - 10/04/08 01:26 PM Re: Which medication gives you the most relief [Re: sarahte]
RubixCubeTO Offline
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I really don't think they treat Fibro with Narcan. Narcan is the reversal med for narcotics.

Indications and Usage for Narcan

Narcan is indicated for the complete or partial reversal of opioid depression, including respiratory depression, induced by natural and synthetic opioids, including propoxyphene, methadone and certain mixed agonist-antagonist analgesics: nalbuphine, pentazocine, butorphanol, and cyclazocine. Narcan is also indicated for diagnosis of suspected or known acute opioid overdosage.

Narcan may be useful as an adjunctive agent to increase blood pressure in the management of septic shock (see CLINICAL PHARMACOLOGY; Adjunctive Use in Septic Shock).

Contraindications

Narcan is contraindicated in patients known to be hypersensitive to naloxone hydrochloride or to any of the other ingredients in Narcan.

http://www.drugs.com/pro/narcan.html
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#778541 - 10/04/08 01:37 PM Re: Which medication gives you the most relief [Re: RubixCubeTO]
sarahte Offline
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OH! well... then...

thats that! LOL

thank you.
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#779033 - 10/05/08 10:13 AM Re: Which medication gives you the most relief [Re: RubixCubeTO]
MarkhW Offline
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Registered: 04/20/06
Posts: 105
There is some research suggesting that extremely low doses of Narcan (naloxone) can be effective for treating pain.
http://www.patentstorm.us/patents/5376662.html

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#779036 - 10/05/08 10:22 AM Re: Which medication gives you the most relief [Re: MarkhW]
RubixCubeTO Offline
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interesting, thanks.
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#780069 - 10/06/08 11:08 PM Re: Which medication gives you the most relief [Re: RubixCubeTO]
sarahte Offline
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I have just read in my big fat Fibro book that there is a doctor who treats Fibro with:

Guaifenesin - digestive enzymes, etc..

He is still in practice not too far from me, I plan to make an appt.

In the meantime, have any of you FMS sufferers read about this or tried it?

It looks very interesting, I hope I can see him soon.
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#780078 - 10/07/08 12:09 AM Re: Which medication gives you the most relief [Re: sarahte]
nephro Online   crying
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It's probably Dr R. Paul St. Amand. I remember this being discussed before because it had something to do with guaifenesin's uricosuric activity initially (since uricosurics have been prescribed for fibromyalgia), but this doctor suggests it is the removal of phosphate, in conjunction with total avoidance of salicylates, that makes it work:

http://www.fibromyalgiatreatment.com/GuaiProtocol.htm

The theory seems to lack reliable evidence, and the claim of 'no side-effects' always looks dodgy, especially since the drug has other uses.

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#780086 - 10/07/08 12:46 AM Re: Which medication gives you the most relief [Re: nephro]
sarahte Offline
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Thanks!

wow, one does need to be very committed! Speaking of not blocking 'guaifenesin'...

"Though they do not block, we do not agree with the use of codeine, hydrocodone, oxycontin, morphine, and methadone that are frequently used to control pain at the cost of eventual addiction, something hardly acceptable when dealing with a chronic illness."

Im not sure I like that philosophy
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#780168 - 10/07/08 07:16 AM Re: Which medication gives you the most relief [Re: sarahte]
nephro Online   crying
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But that philosophy makes the guaifenesin clinic more money!

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#780220 - 10/07/08 08:17 AM Re: Which medication gives you the most relief [Re: RubixCubeTO]
Oxy80 Offline
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 Quote:
where can you get these lidoderm patches?


Most any doctor would typically be more than willing to script you a lidocaine patch before trying something like a narcotic.

I got a box of those patches and they've lasted me for years. For certain pains, like knee pain, they work quite well. For deep down pains you may not have the same success. But they're definitely handy to have around.
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#780557 - 10/07/08 03:07 PM Re: Which medication gives you the most relief [Re: nephro]
sarahte Offline
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 Originally Posted By: nephro
But that philosophy makes the guaifenesin clinic more money!


I just found out there are MANY people starting this regime of guaifenesin without actually joining the clinic or seeing the doctor personally! Which also means we do not have to buy into the philosophy of 'no pain meds' \:D

I may be starting the program next week and see how it goes.
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#780923 - 10/08/08 08:06 AM Re: Which medication gives you the most relief [Re: sarahte]
nephro Online   crying
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Will you buy Mucinex? It will have to be the one that contains guaifenesin only. There are masses of such products in the UK, some of which are very cheap.

I hope it works for you.

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#781010 - 10/08/08 10:58 AM Re: Which medication gives you the most relief [Re: nephro]
Code21 Offline
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I tried the guai protocol years ago, even bought a book by a doctor on it. Remember, that your fibro WILL get WORSE before it gets better. For me, it never got better. Just worse.

Just my two pence.

PS - Lidoderm patches are wonderful if you have mild pain. I'm wasting mine right now on a knee injury that I'm seeing the Dr. for today, and they are even working nicely on that. A doctor will almost for sure give you a script for lidocaine patches over anything else, even Ultram (which I consider to be glorified tylenol).
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#781015 - 10/08/08 11:02 AM Re: Which medication gives you the most relief [Re: Oxy80]
Code21 Offline
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 Originally Posted By: Oxy80

For certain pains, like knee pain, they work quite well.


HAHAHA I didn't even see you wrote this before I replied. Yes they are working well on my knee pain! I better not mention them to the doctor today if I want something else for my pain, which I do. Not only is my knee injured, but now I've worked my fibro up by trying to use crutches to get around! Isn't that how it always works though?

;\) Thanks Oxy


Edited by Code21 (10/08/08 11:10 AM)
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#781434 - 10/09/08 01:33 AM Re: Which medication gives you the most relief [Re: nephro]
sarahte Offline
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Thanks Nephro and Code21

I have been reading thoroughly, yes I know the protacol is cycling' pain. But, I have been at my ablsolute worst in the last couple months so.. I will even take a chance on this treatment if it may actually do some healing - for the long run.

I am buying the pure GUAIF capsules, - though I was told by a support group person in my area that its allright to buy that particular Mucinex-as You mentioned in the regular pharmacy/grocery store. It will be much cheaper. But for now I just want to try it, test it and make sure its going to start me cycling' before I buy a truck load.

knowing my system, I will likely need 600 to 1200mg daily.
I WILL however keep some pain meds on hand... for those off the charts''' hours... that have been nightly heh!

oh, I also cant start this program till I have all the blocking agents' out of my routine. No sense wasting time, money and pain if I dont do this right, eh?

I will let you know how its going sometime.
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#784139 - 10/13/08 09:10 PM Re: Which medication gives you the most relief [Re: sarahte]
bio_nerd Offline
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Registered: 06/23/05
Posts: 27
Hi,

I have been a member here for many years..(2002, I think in a different incarnation)

Diagnosed in 02' with FM.

I am at my wit's end the last few weeks. The pain has become too much.
I am a single mom of 3 kids and I am having trouble doing "the basics" some days, barely able to cook and clean.

Somebody said in an earlier post about people in true pain not becoming addicted to opiates...that is how I feel..When I had leftover Hydrocodone from a root canal and took it one day when the fibro was too much...I actually got to clean a little bit before the pain med wore off!!! I felt like myself!!!

I am laughing at some of the meds that people are taking here..not laughing AT you..just wondering what I am doing wrong...why do I get a script for phenergan for my migraines?????? Is it because I am in an HMO??

Am I better off going to a PPO?? I am is Southern California and I am so tired of this game.... I just want relief? Does anyone know a compassionate Dr. in Southern California?

Six years and a prescription for phenergan and Aleve is not cutting it people!

Life is waiting, and so are my kids...(they deserve better)

Bio nerd

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#794592 - 10/30/08 07:34 AM Re: Which medication gives you the most relief [Re: bio_nerd]
JokerOwling Offline
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 Originally Posted By: bio_nerd
Six years and a prescription for phenergan and Aleve is not cutting it people!

Sorry to hear you are suffering so much bio_nerd.

Have you tried any tri-cyclics at all? If you can tolerate the side-effects(which get better over time) they can help with pain quite effectively.Better than phenergan anyway,probably no worse side-effects either.
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#794597 - 10/30/08 07:43 AM Re: Which medication gives you the most relief [Re: bio_nerd]
dawn147 Offline
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 Originally Posted By: bio_nerd
Hi,

I have been a member here for many years..(2002, I think in a different incarnation)

Diagnosed in 02' with FM.

I am at my wit's end the last few weeks. The pain has become too much.
I am a single mom of 3 kids and I am having trouble doing "the basics" some days, barely able to cook and clean.

Somebody said in an earlier post about people in true pain not becoming addicted to opiates...that is how I feel..When I had leftover Hydrocodone from a root canal and took it one day when the fibro was too much...I actually got to clean a little bit before the pain med wore off!!! I felt like myself!!!

I am laughing at some of the meds that people are taking here..not laughing AT you..just wondering what I am doing wrong...why do I get a script for phenergan for my migraines?????? Is it because I am in an HMO??

Am I better off going to a PPO?? I am is Southern California and I am so tired of this game.... I just want relief? Does anyone know a compassionate Dr. in Southern California?

Six years and a prescription for phenergan and Aleve is not cutting it people!

Life is waiting, and so are my kids...(they deserve better)

Bio nerd
You go girl.....what is wrong to be without pain....if this wrong.....what is right? to suffer?
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#794603 - 10/30/08 07:56 AM Re: Which medication gives you the most relief [Re: dawn147]
FangZ Offline
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Bio nerd, sorry you are in so much pain. Why would they give you just phenergan?
Nothing else for an emergency?
You are talking about migraines, no?

I have taken that for so long, I'm almost immune to it now. Just got switched to another nausea med.

Did you mention to your doctor about the leftover hydrocodone and how it helped? Some doctors are open with those type of discussions and some aren't. Worth a try anyway.

And, on the topic of which pain med works the best, it really depends on what type of pain it is.
For some of my pains, darvocet works when others don't.
For others, it's hydrocodone, and yet others, toradol works.

As for the lidocaine patches, those are wonderful for a lot of pains and I don't think any doctor would argue with rx'ing them. They can be pricy, but worth a shot. I make mine last a long time.
I first used one of my mothers, I was visiting her and she had them for after her knee surgery. She was interested to see if it would work when I was having bad neck pain/headache.
It did take the edge off.
I also got them rx'ed to me during a case of shingles, and they did help, but keeping them on was a problem.
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